jayne gershkowitz

Volunteer position at National Organization for Rare Disorders, where I worked closely with nonprofit professionals and other board members on all operational issues, especially Membership, Leadership Development and Research Committees

Volunteer member of board of directors with emphasis on educational, fund development and clinical research process

* Develop and implement education, outreach, communications and support strategies to increase awareness and understanding of pharmacological chaperone technology, company clinical programs while building and enhancing ongoing relationships with patient community organizations, professional associations and leaders in the rare disease space * Lead Patient Advocacy staff in disease program support and information to individual patients and families affected by lysosomal storage diseases * Represent patient perspective in all cross-functional teams and assist in clinical trial protocols * Manage company charitable contributions program * Collaborate with key state and national biotech and policy organizations on public policy/legislative initiatives * Increase industry discussion of key public policy, bioethics and patient advocacy issues by chairing and presenting sessions at major conference/symposia sessions

Responsible for relationship development and implementation strategy for global interactions with key opinion leaders in patient, HCP and health policy arenas. Direct an integrated team of patient advocates and medical science liaisons. - Lead a partnership approach to orphan drug development process, particularly with clinical programs, trial design, enrollment and retention through direction on variety of cross-functional teams and Executive Team participation. - Involved with industry, advocacy and policy initiatives to advance access to investigational and approved products for people living with rare diseases with proactive, flexible perspectives. - Maintain leadership role to ensure elevation and acceptance of Patient Advocacy as a strategic function in the life sciences industry.

C-suite executive with a systemic strategy to global internal and external Patient Advocacy that defines corporate culture, informs all development and access to orphan drug products, and creates educational and supportive initiatives to improve the lives of individuals and families living with rare diseases.

Senior Vice President and Chief Patient Advocate at Amicus Therapeutics

MBA studies, Radcliffe Seminars Certificate Program, Cambridge, MA Various professional genetics, lysosomal disease and related educational seminars IBM Executive Sales Program Kepner Tregoe Professional Training Other professional marketing, communications training programs Activities and Societies: Women In Communications, Daily Orange